Reaching for a stronger tomorrow
We are a non-profit organization dedicated to raising awareness and funding for research of Pompe disease and other rare diseases.
Pints for Pompe
Team up for trivia and raise a glass as we celebrate five years of our Pints for Pompe event!
Friday, August 28, 2026
Bright Eye Beer Co, Long Beach, NY
7:00pm – 11:00pm
Our Mission
Macie’s Mission is a non-profit organization dedicated to raising awareness and funding for research of Pompe disease and other rare diseases. We are committed to providing vital support to families navigating the challenges of Pompe disease. In fellowship, we uplift and advocate for individuals and organizations that help drive our mission forward.
Introducing the
Macie’s Mission Podcast
Listen along as we share our journey with Pompe disease and how Macie’s Mission came to be! Our message is simple— spread awareness and remind families navigating life with rare diseases that they are not alone.
