Reaching for a stronger tomorrow.
Macie’s Mission is a non-profit organization with the goal of spreading awareness and raising funding for the research of Pompe disease and other rare diseases. We serve, educate, and support the advancement of research and treatments.
Friday, August 22 | 7:00pm
Bright Eye Beer Co.
50 West Park Ave
Long Beach, NY 11561
We’re thrilled to invite you to a returning favorite– Pints for Pompe, hosted by Macie’s Mission. It’s happening at Bright Eye Beer Co. on Friday, August 22, 2025, and trust us, you won’t want to miss it. Whether you’re a seasoned supporter or just hearing about us for the first time, we’d love to have you join in. So bring your friends and family, raise a glass (or two), and show your support for Macie’s Mission!
Saturday, February 8 | 6:00pm
The Monsignor Kelly Center at St. Agnes Cathedral
29 Quealy Pl
Rockville Centre, NY 11570
From a night at the races, to BINGO, and dinner and dancing, our annual event honoring Rare Disease Day is always fun for the whole family. For 2025, we’re excited to host an unforgettable evening of music, fun, and community at the Macie’s Mission Dueling Pianos Fundraiser!
We've Raised Over
and YOU can help us raise even more!
